Arc GLOW

Press release:

Press release:

Genesee ARC Friends & Family 5K & Fun Walk will be held on Saturday, Sept. 26, in Elba. The starting location is 4603 Barrville Road.

Registration begins at 8:45 a.m. The 5K Run starts at 10 o'clock and the Fun Walk begins immediately after the runners have left, within, say, five minutes.

Food, fun, music, kids activities, face painting.

Sign up today! Sponsorships available.

Online registration is available for 5K participants, fun walkers and post-party attendees only @ www.geneseearc.org

You can also e-mail Race Director Sandy Konfederath, at skonfederath@geneseearc.org or call 585-343-4203, ext. 223.

If you wish to support the Genesee ARC Friends & Family 5K as a sponsor, contact the race hotline at (585) 343-4203, ext. 223, or please print and complete the race form and send it with your donation to:

Genesee ARC Friends & Family 5K

64 Walnut St.

Batavia, NY 14020

Press release:

Stafford Country Club hosted Genesee ARC’s 39th annual Lullo Memorial Tournament Monday, the longest-running charity event at the local private club. The tournament features golf, tennis and bocce and raises funds for disability services ARC provides to more than 450 children and adults and their families throughout Genesee County. 

The event chair is Ed Carney; Peggy Lamb and Deb Fischer are the tennis and bocce chairs. 

Coming out on top in the golf was Rod Hamilton who shot a 72, followed by Steve Harrison, 73. Low gross honors for women went to Tina Lambert with an 86.

In the low net category, Paul Barton came in with a 62, and Travis West was a close second with a 63. Maria Woodward had a low net score of 71 for women. Joan DeCarlo is also being recognized with low net honors.  

In the blind bogey competition, Mark Yost matched the blind bogey number drawn of 74.

There were several contests on the course. In the longest drive on 7, John Houseknecht was the winner and winning closest to the line on 15 was Sheila Laird. Rod Hamilton won a Coor’s Lite golf bag, courtesy of C.H. Wright, in closest to the pin on 8 (9’11”). Hamilton also won a Schwinn bicycle, donated by Adam Miller Toy and Bicycle, in the same contest on 14 (4’ 11”). The top winners in the closest to the pin on 12 were Greg Strauss, Chip Braaten, Joe Lestorti and Craig Rinefierd.  

The hole-in-one contest on 8 was sponsored by Castilone Chrysler Dodge Jeep Ram. Unfortunately, no one shot an ace to drive away with a 2015 Jeep Renegade.

In bocce, the first place team was Donna Hummel, Bryan Falitico, Joe Teresi and JoAnne McInerney. 

Top score in tennis went to Steve Rumery. First-place team honors went to Steve Rumery and Phil McNulty and second-place team went to Steve Clemm and Len Jasinski.

Gold sponsors of the event were: Turnbull Heating & Air-Conditioning, The Bank of Castile/Tompkins Insurance Agencies, The Bonadio Group, Graham Corporation, and Tom & Lynn and John Houseknecht. Silver sponsors were: The Batavia Daily News, Oakfield Family Medical Care, Alpina Foods, Erie Niagara Insurance Association, Ralph & Agnes Houseknecht, Ed Arnold Scrap Processors, Inc., Castilone Chrysler Dodge Jeep Ram, Tops Friendly Markets, Bessey Tools, Parkview Health Services, Genesee Valley PennySaver, United Memorial Medical Center and The Insurance Center.

Also supporting the event were 19 golf sponsors, four tennis sponsors, six bocce sponsors and nine Friend of ARC Tournament Sponsors. Door Prizes, silent and Chinese auction items were donated by dozens of area businesses. The 2015 cart sponsor was Manning Napier.

A total of 110 golfers, 14 tennis players and 36 bocce players participated in the annual event that raises money to benefit programs and service for people with disabilities served by Genesee ARC. The winner of the $1,000 cash drawing was Susan Spiotta, of Batavia, with ticket number 19210. Florence Lullo picked the winning ticket.

The tournament is named in memory of Florence’s late husband Danny Lullo. Mr. Lullo was a local businessman who came up with the idea to hold a tournament to benefit Genesee ARC programs and services for people with disabilities in our community.

(Deputy Kevin McCarthy shows parent Kari Powers how to use the tracking bracelet.)

The Genesee County Sheriff's Office partnered with Genesee ARC to provide tracking bracelets to children with disabilities and reassure parents that their child can be safely located.

Twelve children with disabilities were fitted for tracking bracelets today. Transmitters inside the bracelet emit signals and the Sheriff's Office can pick up the the signals with a receiver. The missing child can be located within 15 minutes. 

Sheriff Gary Maha has been trying to implement Project Lifesaver, an program that provides equipment to police officers to locate children who are at risk of wandering, in the county for several years. However, Maha was not able to get the funding until recently. The Sheriff's Office received the equipment through the New York State Division of Criminal Justice Service. The 13 transmitters and two receivers they were given cost approximately $7,500. Each transmitter is worth $350 plus the cost of batteries, which need to be replaced every month.

"I think it's important because there are children out there with disabilities including autism and Down Syndrome and many of these children have a tendency to wander," Maha said. "We have met with parents and they are overjoyed that we were able to get Project Lifesaver here in the county."

The Sheriff's Office worked with the Genesee ARC to help them implement the project. The ARC reached out to the families and assisted them with the process.

Morgan Powers, an 8-year-old with autism, was one of the children who received a bracelet. Her parents, Brian and Kari Powers, were relieved their daughter was getting a bracelet because she has wandered off several times and safety is their biggest concern.

"We are very excited to be here," Kari Powers said. "It has been a couple of months since we found out about the program and we are very strong advocates for it. Morgan is a risk taker. She does a lot of wandering off especially these past two weeks since she has been out of school."

Maha hopes the Sheriff's Office can get more funding in the future to continue the program every year.

Press release:

For many families who have children diagnosed with developmental and intellectual disabilities, including autism, Project Lifesaver is viewed as exactly that – a LIFESAVER!

Genesee ARC has partnered with the Genesee County Sheriff’s Department in support of their effort to bring the Project Lifesaver program to Genesee County. 

The program is part of Project Lifesaver International, a nonprofit organization that bridges the technological gap for “at risk” populations and public safety agencies. It provides police, fire/rescue and other first responders with a comprehensive program including equipment and training to quickly locate and rescue individuals with cognitive disorders who are at risk due to behaviors of wandering and other safety concerns. 

Project Lifesaver has more than 1,400 participating member agencies throughout 48 states in the United States, six provinces in Canada, and Australia, and has performed 3,016 searches over the last 16 years with no serious injuries or fatalities ever reported.

The Genesee County’s Sheriff’s Office has entered into a Memorandum of Understanding with the NYS Division of Criminal Justice Services and the Missing and Exploited Children Clearinghouse for the implementation of the Project Lifesaver program, which provides equipment, training, certification and support to law enforcement, public safety organizations and community groups.

Children identified and their families will participate in training and receive their Project Lifesaver bracelets at the Genesee County Sheriff’s Office in July. The program is overseen by Sheriff’s deputies trained in the Project Lifesaver program.

For more information on Project Lifesaver, visit www.projectlifesaver.org.

Genesee ARC was well represented Saturday at the Color Me Rad 5K at Darien Lake Theme Park.

See also: Photos: Color Me Rad 5K 2015 at Darien Lake

Submitted photos.

Genesee ARC hosted a dance recital today at John Kennedy School for its Challenger program participants. The show was created around a Disney theme. We mistakenly missed the show, but some of the participants posed for us after it was over. Pictured are Cassidy, Mosha, Benny, Aries, Christy and Max.

Press release:

Combine artistic talent, enthusiastic individuals and the desire to help others and the results can be amazing. Genesee ARC’s Friends for the Future self-advocacy group took the lead in a “Pay it Forward” quilt project. The concept of pay it forward is when someone does a good deed, instead of paying it back, the recipient “pays it forward” by doing a good deed for someone else. 

Genesee ARC Intake/QI Specialist Kim Owens came up with the idea of making quilts for those in need. When she presented it to Friends for the Future, they loved it!  Kim’s mother Mabel Buchina, of Yorkshire, agreed it was a phenomenal project and offered to help by donating quilt squares and sewing the finished pieces together.

The quilt squares were used as part of a presentation at the Finger Lakes Collaborative Self-Advocacy Conference this past fall in Geneva, Kim explained.

“The advocates presented on what 'Pay it Forward' means and enlisted the help of conference attendees to design the quilt squares with meaningful and inspirational messages or images,” she added.

One-of-a-kind creations include rainbows and flowers and words of comfort like “You are Loved” and “Stay Strong.” A shining sun, footballs and the Buffalo Bills logo also adorn the squares. The six finished quilts will be donated to local organizations helping people who are struggling with illnesses such as cancer. 

During the March observance of Developmental Disabilities Awareness Month, Genesee ARC is celebrating the accomplishments of people with intellectual and developmental disabilities and working to increase the public's awareness and understanding.

Althea Penepent (right) with her daughter-in-law Jeanne and daughter Valerie. Mrs. Penepent is speaking out on the need for expanded services for people with developmental disabilities in New York State for her daughter and thousands of others on a waiting list for residential services.

Press release:

BYRON – Althea Penepent often wonders (and worries) what will become of her daughter Valerie after she’s gone. So, Althea has joined a growing number of families across New York State advocating for expanded services for people with intellectual and other developmental disabilities. The “Families Cannot Be Caregivers Forever Campaign” calls current funding in the New York State Budget completely inadequate to meet the needs of these New Yorkers, many living at home with aging parents.

Valerie is the seventh and youngest child of Althea and Richard Penepent, born Feb. 2, 1977. Althea shares that her pregnancy and delivery with Valerie were the same as her first six children. She was blindsided when her doctor came into her hospital room after Valerie was born and coldly stated, “Women over 40 shouldn’t have a child because she’s mongoloid,” then turned on his heel and left. A nurse’s aide called Richard Penepent, plowing snow in the aftermath of the Blizzard of ’77, to come talk to his wife.

When Althea told Richard their baby girl had Down syndrome, he calmly and confidently said, “Althea, we’ll handle it.” Those words from her husband were all Althea needed to hear to reassure her that her new baby would have every opportunity to thrive and learn in a home filled with love.

Today, Richard Penepent, 88, has dementia and has been in the Le Roy Village Green Nursing Home for 13 months. In looking back on this last year, Althea reflects, “He doesn’t recognize very many people any more – but he always knows Valerie, no matter what, and calls her by name.”

Genesee ARC Medicaid Service coordinator Roxanne Monteleone has worked with the Penepent family for the last ten years.

“Valerie’s future weighs heavily on Althea. Valerie is on a waiting list for residential placement, but with no funding in the State Budget, every agency’s hands are tied,” Monteleone said. “It’s a very real concern for many families we serve."

Valerie has had an amazing 38 years, and she will proudly share her many accomplishments.

“I graduated from Batavia High School in 1998 and then began working at the workshop (ARC Sheltered Work Center), Valerie said. "I like to cook, dance, do laundry, crafts, go shopping and do jigsaw puzzles.”

According to her sister-in-law Jeanne Penepent, “Valerie loves to gives birthday cards and is always sharing little gifts for special occasions.”

The recent death of Althea’s sister and sister-in-law combined with her husband’s health and her own glaucoma has Althea even more concerned for Valerie’s future.

“She has come a long way,” Althea said.

Besides regular and special education schooling, the family paid for private math and reading classes for Valerie for 20 years in a program that originally began at the Rochester Institute of Technology.

Valerie has been attending the Genesee ARC Sheltered Work Center day program since she turned 21. She has learned a lot of new skills and tackles every job with great pride. When asked her favorite job, her immediate response is, “cheese boxes,” a longtime Work Center contract for Yancey’s Fancy.

“What concerns me is where she will live, who will care for her after I’m gone,” Althea said, “Valerie is a blessing, but my other children have families and concerns of their own. I feel a residential placement is the best for Valerie’s future.”

According to the most recent data provided by Genesee ARC’s state association, NYSARC, Inc., 12,000 people in New York are on a waiting list for residential options, while 4,000 people are in critical need.

The last time there was any major residential development in New York State was in 1998 with the announcement of the NYS CARES (New York State Creating Alternatives in Residential Environments and Services) program by then Governor George Pataki. NYS CARES was pegged as a five-year plan to virtually eliminate the waiting list for out-of-home residential services for people with intellectual and other developmental disabilities.

“While NYS CARES resulted in meeting the needs of thousands of New Yorkers, at the time, development has been at a standstill for years,” Genesee ARC Executive Director Donna Saskowski said. “New York needs to step up and provide the necessary funding, to help the thousands more families like the Penepents."

While facing so many life changes, Althea Penepent wondered aloud how different life might be if Governor Cuomo was in her shoes.

“If he had a handicapped child, maybe then he would understand,” the mother said. “Valerie votes --- 'people with disabilities have rights, too.' "

NYSARC statistics estimate nearly 200,000 people with developmental disabilities in New York State live with family caregivers; more than 50,000 live with family caregivers over 60 years of age.

Families across New York are urging their state legislators to advocate on their behalf to include funds in the upcoming budget to provide critical residential services, at last giving families peace of mind, knowing when they’re gone their child with a disability will be cared for.

A link to the Families Cannot Be Caregivers Forever Action center is on the Genesee ARC Web site, www.geneseearc.org.

Collin Wickings gets a helmet adjusted before taking a snowmobile ride in Oakfield this morning.

Genesee Sno Packers hosted their annual ride for clients of Genesee ARC, an event that had to be cancelled last year because there wasn't enough snow on the ground. This year, plenty of snow.

Colleen Fisher getting ready for her ride.

Press release:

Thanks to two Rochester area donors, 20 children with disabilities served by Genesee ARC recently received new bicycles! 

The Park Avenue Bicycle Shop made the delivery to Genesee ARC’s Community Relations office in mid-December, giving staff just enough time to match bikes to recipients and deliver them in time for Christmas.

Howard and Michael Ouriel are the generous brothers behind the donation and said, “We just wanted to do something for the kids.”

ARC Director of Development Shelley Falitico, who helped deliver some of the bicycles, said all of the families are appreciative of the Ouriels’ generosity.

“We are so honored that Howard and Michael thought of Genesee ARC for this special holiday act of kindness,” Falitico said.

The Ouriel brothers’ support of Genesee ARC is unique in that they reside outside of Genesee County and do not have a family member served by the local nonprofit organization. 

“That’s what makes this so extraordinary,” Falitico said. “It’s a story we are so happy to share.”   

Press release:

More than 140 baskets are featured at the fourth Annual Genesee ARC Chili & Chowder Fest and Basket Raffle on Saturday (Nov. 15) at the Genesee ARC Community Center. 

The event begins at 10 a.m. and winners will be drawn starting at 1:30 p.m. Community members who already have Saturday plans, can get in on the fun because for a second year in a row the Center at 38 Woodrow Road will be open from 4:30 p.m. – 6:30 p.m.  Friday for ticket-only sales. 

Event Chair Shelley Falitico said this was wildly popular last year.

“It’s a wonderful opportunity for people to stop by after work and take a chance on some great baskets donated by ARC Staff, families and local businesses.” 

There is no separate admission charge. Ticket chances for regular baskets are $10 for 25 chances or $25 for 75 chances. Specialty baskets, valued at $50 or more, cost $10 for 15 chances. This year’s grand prize is a spectacular cleaning package, valued at $475, featuring a vacuum cleaner and a wheeled trash tote filled with of every type of cleaning supply imaginable. 

Tickets for the grand prize are $2 each; 3 for $5 or 8 chances for $10.

During the event on Saturday, there will be a variety of chili (red, white and vegetarian), Manhattan clam chowder and chicken noodle soup for sale along with grilled cheese sandwiches. A bake sale is also featured.

Kids participating in the city's summer program at Lambert Park toured the recycling center at Genesee ARC this morning.

The Genesee ARC today held its 38th annual golf tournament at Stafford Country Club, which also included tournaments in bocce ball and tennis.

Above, Steve Pies watches a put just barely slide by the cup during his tournament round.

Ken Barrett hitting a tee shot.

Ray Shirtz playing tennis.

Krysia Mager, Lisa Dechau, Bob Bennett and Marth Bailey, the champion bocce ball team.

Representatives from Alpina yogurt at the bocce ball tournament. Alpina was a silver-tier sponsor this year.

Press release:

Genesee ARC honored supporters, volunteers, community members, individuals served and staff during its 48^th Annual Meeting & Awards Ceremony Friday night at the Clarion Hotel. Assemblyman Steve Hawley was the 2014 master of ceremonies.

During opening remarks, ARC Executive Director Donna Saskowski shared that the field of developmental disabilities is in a state of transformation.

“Choice is not as primary as it once was," Saskowski said. "We continue to be the focus of the Governor who believes that New York State is spending too much money on Medicaid, the primary funding source for the people we support."

The executive director challenged everyone at the banquet to go out and this story to someone who doesn’t know about Genesee ARC.

“We need to advocate, talk to our government representatives, and help educate our community about those we support and their real impact and value to our community,” she said. “If each one of us talked to just one more person about the skills of our workers and their dedication to their employers I think new community based jobs would quickly develop, there would be more volunteer opportunities and ARC would develop an even larger base of supporters."

The 2014 Spirit of ARC Award was presented to the Rotary Club of Batavia. This award was established nine years ago to recognize an organization, business, family, or individual who exemplifies the mission of ARC. The Rotary Club is always reaching out to Genesee ARC and individuals served, welcoming and including people of all abilities in their community events.

Saskowski, herself a Rotarian, said “This is a dedicated group of local men and women who actually possess a laser focus on community improvement, youth development and social responsibility.“The Rotary Club’s financial contributions have spearheaded major capital improvements at UMMC, the YMCA, GO-ART! and Genesee Community College. At Genesee ARC, the Rotary Club made a significant pledge to the agency’s People Realizing Potential campaign to help fund renovations at the Community Center resulting in a culinary arts training center for people with disabilities. Several Rotarians attended the presentation and the award was accepted by Club President Hollis Upson."

Bergen residents Carl and Candie Pocock were presented with Volunteer of the Year honors. Saskowski said the award is in recognition of the Pococks’ commitment to Genesee ARC and our mission. Candie is involved with the Byron Kiwanis recreation program for children with disabilities and the area summer reading program. She was also a former leader in the County 4-H program. The couple also participates in various committees of the United Methodist Church.

Carl and Candie’s work with Genesee ARC started in 1996 when their daughter Michelle began to receive services from the agency.

“They are tireless advocates for all people with disabilities and help insure that everyone we serve, receive the services they need,” Saskowski said. "Two years ago Candie stepped up to take on the lead role as president of the Genesee ARC Board of Directors and both she and Carl volunteer at Genesee ARC fund raisers.

The Business Partner of the Year award was presented to Applied Business Systems, Inc. Steve Samis, ABS vice president of Production was on hand to accept the honor. Genesee ARC has had a longtime partnership with Applied Business Systems through the ARC Work Center and last year they provided the opportunity to run two temporary work enclaves at their site on Harvester Avenue in Batavia.

According to Scott Jones, director of Vocational Services, ABS believes in the value of the Genesee ARC workforce.

“ABS has shown a commitment to providing employment to people with developmental disabilities by consistently returning to us with new work projects and ideas for future projects,” Jones said “...Thanks to the work opportunities ABS has provided they have helped to benefit the individuals served by our agency by helping them to develop crucial job skills and opportunities to become more independent as contributing members of their community.”

A surprise Lifetime Membership Award was presented to Thelma C. Montreal, of Batavia.  Genesee ARC has always been near and dear to Mrs. Montreal as she is a parent and grandparent of children with developmental disabilities. Thelma is a member and past president of the Genesee ARC Board of Directors, and served several years on the NYSARC Board of Governors. The award is in recognition of her many years of service to Genesee ARC and individuals served by the agency.

Friend of ARC Awards were presented to:

CP Rochester Dental Clinic -- Charles O. Kolthoff, DDS and the Staff of CP Rochester Dental Clinic were presented an award in recognition of their exceptional talents and compassion in providing dental care for individuals with disabilities. 

Anne Marie Starowitz -- A retired teacher, Anne Marie was recognized for the difference she has made in the life of an individual at ARC as a reading tutor. Anne Marie is helping this individual gain more independence.

Howard and Michael Ouriel -- The Ouriel brothers offer quiet, behind-the-scenes support to Genesee ARC. Their many acts of kindness include donating funds to purchase special wish list items, enhancing the lives of individuals served. They also support recreation and sports opportunities for children with disabilities.

The following received Genesee ARC Achievement awards: Gabe Norton, Jacob Klotzbach, Dolores Wanser, James Grudzien, Janette Vick, Mael, Joan Pietyzkowski, Jonathan Hedrick, and Dan Ware.

Genesee Staff Shining Star honorees for 2014 are: Linda Conroy, Medicaid Service coordinator; Darla Jaszko, coordinator of Administrative Services; Richard Majors, residential assistant; James Owens, mechanic; and Michelle Wheatley, Day Hab specialist.

Longevity awards went to the following individuals: Lucy Brown and Patty Sheedy, 40 years; Bob Adam, Alan Birge, Steve Jenney and Tom Dissette, 35 years; Paul Johnson, David Miner, Tom Montreal and John Wiggins, 30 years; John Brown, Alvin Stewart and Ken Sheehan, 25 years; Phyllis Riley, Mary Welsh, Elizabeth, David, Joseph Duganier, Marjorie Keppler, Hayley Brandes, and Robert Cummings, 20 years.

Staff Longevity award recipients were: Donna Saskowski, 25 Years; Elizabeth Hopkins, James Owens, Reneé Potter, Carolyn Cauthen and Shelley Kropelin, 20 Years; Debra Worthington, Lauraine Cornell, Carolyn Griffin, Darla Jaszko, Scott Lang, Angela Spikes and Marla Snyder, 15 Years; Roxanne Monteleone, June Lawrence, Debra LaDue, Sue Given, and Catherine Pangrazio, 10 Years.

More than 325 guests were in attendance at the banquet ,which also serves as Genesee ARC’s official annual meeting. Board officers for the upcoming year are: Candie Pocock, president; Debrah Fischer, vice president; Jane Scott, treasurer, and Deborah Riggi, secretary.