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multiple sclerosis

Batavia Multiple Sclerosis Support Group meets the second Tuesday of each month

By Billie Owens

Join the Batavia Multiple Sclerosis Support Group to connect with other people affected by MS and learn more about services offered by the National MS Society and Independent Living of the Genesee Region.

The group meets the second Tuesday of each month from 4 to 5 p.m. at Independent Living, 113 Main St., Batavia. For more information please call 1-800-344-4867 or e-mail megan.vaughan@nmss.org.

Workshop on physical therapy, exercise and yoga offered for people with multiple sclerosis

By Billie Owens

Press release:

A workshop geared specifically for those suffering with multiple sclerosis will focus on physical therapy, exercise, and yoga as tools to manage symptoms, gain strength and balance, and improve quality of life. MS, Yoga & You will be held from 1 - 4 p.m. on Saturday, Feb. 27, at Summit Physical Therapy in Batavia.

Gretchen Hawley, DPT has additional certification in treating patients with multiple sclerosis. She lives and works in Boston and is one of only two MS cerfitied physical therapists in Boston. Patricia Hawley is a registered yoga teacher at Blue Pearl Yoga in Batavia. Together they will present information on how exercise and physical therapy can benefit MS as well as give instruction in simple yoga poses that may alleviate symptoms such as fatigue, muscle weakness, spasticity, and incontinence.

“My MS patients who follow an exercise regimen and are consistent with their physical therapy program have a marked improvement over those who rely on medication alone,” says Gretchen Hawley. “And neurologists agree that those dealing with MS can improve their quality of life with the addition of exercise.”

“Many people think that you have to be very flexible to begin a yoga practice,” according to Patricia Hawley “but often the people who benefit the most from yoga are those who have limited mobility. It’s all about going slow and choosing the right class for your needs.”

Participants are encouraged to bring their own yoga mat but it is not necessary; mats will be available at the workshop.

The event will be held at Summit Physical Therapy, 99 Med Tech Drive, #104, Batavia. Cost for the workshop is $35 and seating is limited to 25 people. Anyone interested may register at www.bp-yoga.com or by calling 585.813.8623

National MS Society presents update tonight at Clarion Hotel on progess of research

By Billie Owens

Press release:

Just as the National MS Society invests $29 million in new research to support an expected 83 MS research projects to stop multiple sclerosis, local MS researchers will be updating the community on “MS Research: The Progress, The Promise,” at the Clarion Hotel in Batavia tonight (Thursday, April 10). The free event is from 6 to 7:30 p.m. and is open to the public and hosted by the National MS Society Upstate New York Chapter. The Clarion is located at 8250 Park Road.

Researcher Fraser Sim, Ph.D, assistant professor at the University at Buffalo, will be presenting. Dr. Sim specializes in neurodegenerative disorders. He was recently awarded a three year, $554,973 grant from The National MS Society to study myelin-forming cells. Dr. Sim and his fellow University of Buffalo researchers are investigating the ability of an FDA-approved drug to improve myelin synthesis and repair in mice.

Also presenting is Brandon Yehl, Pa., who has lived half of his life with MS. He graduated from the RIT physician’s assistant program in 2006. For four years he worked in a neuro-ophthalmology clinic playing a role in the care of more than 750 patients with MS. He now works in a private neurology clinic.

The National MS Society has already invested more than $50 million in 2014 to support 380 new and ongoing studies around the world. The 83 new projects are part of a comprehensive research strategy aimed at stopping MS, restoring function that has been lost, and ending the disease forever  ̶  for every single person with MS.

Multiple sclerosis interrupts the flow of information within the brain and between the brain and the body. Most people with MS are diagnosed between the ages of 20 and 50, with at least two to three times more women than men being diagnosed with the disease. The rate of diagnosis in Upstate New York is about double the national average. MS affects more than 2.3 million people worldwide and more than 12,800 people in the 50-county region served by the Upstate New York Chapter. For more information, visit <http://www.MSupstateny.org>

“MS research is a priority, and we strive to pursue all promising research paths and collaborate worldwide to drive progress toward a cure,” says Stephanie Kunes-Mincer, president and CEO of the National MS Society Upstate New York Chapter. “The Society has fueled many advances in understanding and managing MS, and we will keep moving forward until we can say goodbye to MS forever."

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